What is a Paraganglioma?
I was informed that I had a paraganglioma, located posterior mediastinal. It is estimated that the prevalence of paragangliomas is 2 in 1 million people. These statistics include syndromic and nonsyndromic paraganglioma.
I am still learning a lot about this type of tumor and will continually update and post reading material and other findings here. It's been a year after surgical removal already and the learning hasn't slowed down.
One can go to any number of resources to learn and read more about this rare endocrine disorder. Linked below are a few sites going into greater detail:
No comments:
Post a Comment